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Welcome to ESRD Network
18
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Our
Mission
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To provide
leadership and assistance to renal dialysis and
transplant facilities in a manner
that supports continuous improvement in patient care,
outcomes, safety and satisfaction.
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Links
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Educational Materials for Patients and Professionals |
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AAKP (look for
Protein/Calorie Counter,
Hemodialysis Advisory, Na-K Phos Counter,
Brochures on depression,
aakpDelicious!,
At Home with AAKP, etc.). Tell patients about the
AAKP
HealthLine, a free one-hour conference call designed to educate patients on a
variety of topics, find the dates and information on their website.
www.aakp.org |
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Mid-Atlantic Renal Coalition (MARC) is
pleased to offer "Caring Through the End: Palliative Care Along
the Continuum of CKD" on the web.
www.hdcn.com |
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Sample recipes from `Cooking for David: A culinary Dialysis Cookbook'
www.CulinaryKidneyCooks.com |
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DaVita Diet
Helper - a free online tool to help you
plan meals, find recipes, and more.
www.davita.com/diethelper/ |
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Home Dialysis Central offers resources and support for patients
and professionals interested in peritoneal dialysis and home hemodialysis.
Find a clinic that offers home dialysis, write to your legislature,
read patient stories, post to moderated message boards, see home
dialysis machines, and more.
www.homedialysis.org
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Life Option's Kidney School - Learn how
to live a long and full life at Life Option's Kidney School.
You choose what you want to learn, and it's free 24 hours a day.
Kidney School will help you learn how to take charge of your health.
www.kidneyschool.org |
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Life Options - For free, research-based
materials to help you live long and live well with kidney disease, visit the
Life Options web site (look for
A Guide to Work, Insurance, and Finance for People
on Dialysis,
New Life, New Hope: A Book for Families and Friends
of Renal Patients, and more).
www.lifeoptions.org |
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Medicare Publications - "Click" on Find a Medicare Publication
(look for Medicare Coverage of Kidney Dialysis and Kidney Transplant
Service booklet, Dialysis-Keeps People with Kidney Failure
Alive-Are you getting adequate hemodialysis? and more).
www.medicare.gov |
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Medicare Rights Center -
General Medicare information and educational material,
changes in the Medicare program, information on proposed Medicare
Legislation.
www.medicarerights.org |
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National Kidney Foundation (look for
Family Focus Newspaper and a wealth of other educational materials)
www.kidney.org |
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National Kidney Foundation of Southern California
(look for educational materials)
www.kidneysocal.org |
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National Kidney and Urologic Diseases Information Clearing House
(check out the new Spanish portal)
www.niddk.nih.gov
Spanish portal
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Recipes for Living
Well - available on the AKF website, it offers healthy eating
tips, kidney-friendly recipes, interactive message boards and a recipe
submission contest.
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Renal Net
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An educational resource that provides information
on kidney disease for both professionals and any interested party.
www.renalnet.org |
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UNOS (look for
What Every Patient Needs to Know and other Transplant related
information)
www.unos.org
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Other Resources |
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Advance HealthCare Organizations and
Forms
California Hospital Association (CHA) (800) 494-2001
www.calhealth.org
California Medical Association (CMA) (800) 882-1cma
www.cmanet.org |
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American Kidney Fund
(look for information on Patient Aid Programs)
www.kidneyfund.org |
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ANNA's Web Resource, Spotlight on Older
Adults
www.annanurse.org/aging |
Centers for Medicare & Medicaid
Services - ESRD Resources
www.cms.hhs.gov/providers/esrd.asp |
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Dialysis Facility Compare (DFC) - "Click"
on Compare Dialysis Facilities in your area. This site provides dialysis
facility characteristics, demographic information and quality measures data
about dialysis facilities that have been approved by Medicare.
www.medicare.gov |
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Donate Life! Be an organ and tissue donor.
www.donateLIFEcalifornia.org |
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Eldercare Locator - Helps older adults and their caregivers find
local services for seniors, including the information and referral I&R
services of their state and area agencies on aging.
www.eldercare.gov |
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ESRD Networks - contact another Network
www.esrdnetworks.org |
FDA MedWatch
www.fda.gov/medwatch |
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Where Dialysis. Find Dialysis Facilities
in the USA
www.wheredialysis.com |
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Medicare Issues and Answers
www.esrdnet5.org |
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National Alliance for Caregiving - Web site includes studies,
tips for caregivers, and a searchable caregiving resources directory.
www.caregiving.org |
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People Like Us: Long-term Care Residence Chronic Kidney Disease
Checklist - NKF.
www.ltckidneychecklist.org |
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Social Security Administration - Information on eligibility,
benefits, publications and more.
www.ssa.gov |
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The Nephron Information Center - An educational resource that
provides links to nephrology and dialysis resources.
www.nephron.com |
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The Renal Support Network - A non-profit group dedicated to
improving the lives of people living with kidney disease. Tell patients
about the HOPELine, a toll-free phone line for peer support: (800)
579-1970.
www.renalnetwork.org |
United States Renal Data System
National studies on renal care
www.USRDS.org
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Immunization/Infectious Diseases |
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California Hepatitis Resource Center Website
www.hepatitisrcca.info/
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CDC: Infectious disease information, publications, studies and forms
www.CDC.gov/publications
www.CDC.gov/cdcrecommends |
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CDC Guideline for Prevention of Intervascular Device-Related Infections
www.cdc.gov/ncidod/hip/iv/iv.htm
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NEW: CDC's Hepatitis C Toolkit - CDC's Division of Viral Hepatitis recently posted the complete contents of its Hepatitis C Toolkit on its website. The toolkit includes the following: online
training, a physician's booklet, a reference for interpretation of hepatitis C virus (HCV) test results, HCV infection testing for diagnosis, recommendations
for testing based on risk for HCV infection, a patient information card, and a patient-education poster in English and Spanish.
www.cdc.gov/ncidod/diseases/hepatitis/c/index.htm#toolkit
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County of Los Angeles Public Health
information on reportable diseases & public health issues
www.lapublichealth.org |
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Diseases and Conditions Directory - Provides useful diseases and conditions resources
www.diseasesconditions.com
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Immunization Action Coalition Hepatitis B Booklet: free patient/staff materials
www.immunize.org/catg.d/free.htm
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Immunization Action Coalition Hepatitis information/education forms and Vaccine Information Statements
www.immunize.org/vis
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Immunization Action Coalition extensive listing of various vaccination tools and techniques
www.immunize.org/izpractices |
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New Medicare question and answer guide to coverage for influenza and pneumococcal vaccinations
www.cms.hhs.gov/preventiveservices/2i.pdf
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Safe & Timely Immunizations Coalition - A Comprehensive Resource
Guide of Educational Materials on Hepatitis B, Influenza, and Pneumococcal
Immunizations
http://www.esrdnetwork6.org/STICCoalition.htm |
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Pandemic Flu |
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California Department of Health Services (CDHS) - Division of Communicable Disease Control - Pandemic Influenza Preparedness and Response Plan, Appendix 3 & 4
www.dhs.ca.gov/ps/dcdc/dcdcindex.htm |
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PandemicFlu.gov - Official U.S. Government Web site for information on pandemic flu and avian influenza
www.pandemicflu.gov/
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Pandemic Influenza: Worldwide Preparedness -
Center For Disease Control & Prevention Info
www.cdc.gov/flu/pandemic/
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U.S. Department of Health & Human Services
Pandemic Influenza Plan - Contains the following:
- HHS Pandemic Influenza Plan Fact Sheet
-Overview of Plan
- Part 1 - HHS Strategic Plan
- Part 2 - Public Health Guidance for State & Local Partners
www.hhs.gov/pandemicflu/plan/
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World Health Organization
www.who.int/csr/disease/avian_influenza/en/ |
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Copyright © 2007
The Southern California Renal Disease Council / ESRD Network 18 |
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