Advance Directives and End of Life
The Advance Health Care Directive Act: A Guide for Chronic Dialysis
Facilities
Provides an overview of dialysis facility responsibilities under
the California Advance Health Care Directive Act.
The Advance Health Care Directive Act: A Guide for Chronic Dialysis Patients/Spanish
An UPDATED version of a 2002 booklet prepared by the two California
Networks on Advance Health Care Directives law and form.
End-of-Life Attitudes in California FACTS/Spanish
A fact sheet providing highlights from a 2006 statewide survey on End-of-Life
issues and care in California.
End-of-Life Care for Renal Patients — Questions and Answers/Spanish
A document adapted from Network 5 Kidney End-of-Life Coalition to answer
questions that patients and/or their families may have on End-of-Life care.
California Law Mandates Discussing End-Of-Life Options - Physicians must talk about hospice, at the request of dying patients, but they are not required to discuss palliative sedation or refusal of food and water. Read more...
Amednews.com
California’s Health Care Decisions Law Fact Sheet for Professionals
This fact sheet by the
California Coalition
for Compassionate Care provides an overview of the law from the perspective
of the healthcare providers.
Advance Health Care Directive Fact Sheet for Consumers
This document by the
California Coalition
for Compassionate Care provides an overview of the law from the perspective
of the consumer.
Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference
Journal of Palliative Medicine, Volume 12, Number 10, Year 2009.
Abstract: A Consensus Conference sponsored by the Archstone Foundation of Long Beach, California, was held February 17–18, 2009, in Pasadena, California. The Conference was based on the belief that spiritual care is a fundamental component of quality palliative care. This document and the conference recommendations it includes builds upon prior literature, the National Consensus Project Guidelines, and the National Quality Forum Preferred Practices and Conference proceedings.
Palliative Care Hotline Launched in Califonia
The Institute for Palliative Medicine has launched the Palliative Care Hotline to give communities in California lacking palliative medicine resources the opportunity to receive quality palliative care consultative and educational support. The toll free number for “PAL-MED” is 877-PAL-MED4.
What should you know about Palliative Care?
A fact sheet from
getpalliativecare.org defining and describing palliative care.
Parnters For Children Waiver Lauched
California has entered into a formal agreement with the Centers for Medicare and Medicaid Services to pilot the children’s hospice and a palliative care waiver program in 13 counties over the next three years. It is anticipated that first five counties – Alameda, Monterey, San Diego, Santa Clara and Santa Cruz – will begin providing services under the program by the end of the year. The Partners for Children waiver will allow eligible children to receive concurrent curative and palliative care. (Fundamental of Pediatric Palliative Care California's Pediatric Palliative Care Benefit Powerpoint)
Nursing Home Residents and Hospice
A study from Harvard Medical School found that hospice care in nursing homes provides benefits for the residents. These include higher quality end-of-life care, reduced hospitalizations, and improved pain management. Hospice care in nursing homes was also found to have positive effects on non-hospice residents, indicating indirect benefits on nursing home clinical practices.
Plan Ahead: Advance Care Planning (legal size brochure)/Spanish
The document discusses/describes the types of Advance Directives, and
defines common life support measures to consider in planning Advance Directives.
Advance Directives & End-of-Life Care — Online Resources (brochure)/Spanish
A handy guide of online resources that Network 18 found to be patient
friendly and easy to understand.
Advance
Care Planning: For the Dialysis Patient and their Family
Visit the Kidney End-of-Life
Coalition website and download an order form for this booklet developed by
the Mid-Atlantic Renal Coalition (NW 5) and the Academy for Educational
Development to help dialysis patients plan their care.
Literature Review on
Advance Directives
U.S. Department of Health and Human Services Assistant Secretary for Planning
and Evaluation Office of Disability, Aging and Long-Term Care Policy
Chinese American Coalition for
Compassionate Care (CACC)
CACCC is an organization devoted to end of life among Chinese Americans. Visit
their website for resources and information in Chinese.
Low Literacy Advance Directives
The Institute for Health Care
Advancement (IHA) has easy-to-read, easy-to-understand California forms and
instructions in multiple languages.
English
Spanish
Chinese
Vietnamese
ANNA series End-of-Life
Decision-Making and the Role of the Nephrology Nurse
Module 2: Ethical and Legal Aspects of Advanced Care Planning (ACP). 1.0 CE
credits.
California Coalition for Compassionate Care Newsletters
The statewide resource on end-of-life issue
End of Life Decisions Series
Sacramento Healthcare Decisions
Includes the following topics:
The Changing Role of Medicine - Our Changing View of Death
Quality of Life
How to Communicate Your End-of-Life Decision
Tools of Communication
Building a Partnership with Your Doctor
Living and Dying in a Caring Community
Sharing the Care: The Role of Family in Chronic Illness
California HealthCare Foundation - August 2009
Revised Consumer Brochure and FAQs
A revised brochure designed to introduce POLST to consumers is now available in PDF format at www.caPOLST.org. Also available on the website are updated Frequently Asked Questions (FAQs) for consumers and providers.
New Sources for Printed POLST Forms
POLST forms are now available for purchase from MED-PASS. The forms come pre-printed on Pulsar Pink card stock, and are available in tablets of 100 forms. The California Medical Association has developed a POLST Kit for purchase which includes a POLST form, wallet card and Frequently Asked Questions.
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