Our Mission

To provide leadership and assistance to renal dialysis and transplant facilities in a manner
that supports continuous improvement in patient care, outcomes, safety and satisfaction.

Advance Directives and End of Life

The Advance Health Care Directive Act: A Guide for Chronic Dialysis Facilities
Provides an overview of dialysis facility responsibilities under the California Advance Health Care Directive Act. 

The Advance Health Care Directive Act: A Guide for Chronic Dialysis Patients/Spanish
An UPDATED version of a 2002 booklet prepared by the two California Networks on Advance Health Care Directives law and form.

End-of-Life Attitudes in California FACTS/Spanish
A fact sheet providing highlights from a 2006 statewide survey on End-of-Life issues and care in California.

End-of-Life Care for Renal Patients — Questions and Answers/Spanish
A document adapted from Network 5 Kidney End-of-Life Coalition to answer questions that patients and/or their families may have on End-of-Life care.

California Law Mandates Discussing End-Of-Life Options - Physicians must talk about hospice, at the request of dying patients, but they are not required to discuss palliative sedation or refusal of food and water. Read more...
Amednews.com

California’s Health Care Decisions Law Fact Sheet for Professionals
This fact sheet by the California Coalition for Compassionate Care provides an overview of the law from the perspective of the healthcare providers. 

Advance Health Care Directive Fact Sheet for Consumers
This document by the California Coalition for Compassionate Care provides an overview of the law from the perspective of the consumer.

What should you know about Palliative Care?
A fact sheet from getpalliativecare.org defining and describing palliative care.

Plan Ahead: Advance Care Planning (legal size brochure)/Spanish
The document discusses/describes the types of Advance Directives, and defines common life support measures to consider in planning Advance Directives. 

Advance Directives & End-of-Life Care — Online Resources (brochure)/Spanish
A handy guide of online resources that Network 18 found to be patient friendly and easy to understand. 

Advanced Care PlanningAdvance Care Planning: For the Dialysis Patient and their Family
Visit the Kidney End-of-Life Coalition website and download an order form for this booklet developed by the Mid-Atlantic Renal Coalition (NW 5) and the Academy for Educational Development to help dialysis patients plan their care.

 

 


Literature Review on Advance Directives
U.S. Department of Health and Human Services Assistant Secretary for Planning and Evaluation Office of Disability, Aging and Long-Term Care Policy

Chinese American Coalition for Compassionate Care (CACC)
CACCC is an organization devoted to end of life among Chinese Americans. Visit their website for resources and information in Chinese.

Low Literacy Advance Directives
The Institute for Health Care Advancement (IHA) has easy-to-read, easy-to-understand California forms and instructions in multiple languages.
English    Spanish    Chinese    Vietnamese

ANNA series End-of-Life Decision-Making and the Role of the Nephrology Nurse
Module 2: Ethical and Legal Aspects of Advanced Care Planning (ACP). 1.0 CE credits.

 

 

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