Links

Educational Materials
The AAKP (look for Protein/Calorie Counter, Hemodialysis Advisory, Na-K Phos Counter, Brochures on depression, aakpDelicious!, At Home with AAKP, etc.). Tell patients about the AAKP HealthLine, a free one-hour conference call designed to educate patients on a variety of topics, find the dates and information on their website.
www.aakp.org

DaVita Diet Helper - a free online tool to help you plan meals, find recipes, and more.
www.davita.com/diethelper/

Home Dialysis Central
Offers resources and support for patients and professionals interested in peritoneal dialysis and home hemodialysis. Find a clinic that offers home dialysis, write to your legislature, read patient stories, post to moderated message boards, see home dialysis machines, and more.
www.homedialysis.org

Life Option's Kidney School
Do you want to live a long and full life on dialysis? Learn how at Life Option's Kidney School.
www.kidneyschool.org You choose what you want to learn, and it's free 24 hours a day. Kidney School will help you learn how to take charge of your health. For free, research-based materials to help you live long and live well with kidney disease, visit the Life Options web site at www.lifeoptions.org (look for A Guide to Work, Insurance, and Finance for People on Dialysis,  New Life, New Hope: A Book for Families and Friends of Renal Patients, and more)

Medicare Publications - "Click" on Find a Medicare Publication (look for Medicare Coverage of Kidney Dialysis and Kidney Transplant Service booklet,  Dialysis-Keeps People with Kidney Failure Alive-Are you getting adequate hemodialysis? and more)
www.medicare.gov

Medicare Rights Center - General Medicare information and educational material, changes in the Medicare program, information on proposed Medicare Legislation.
www.medicarerights.org

Mid-Atlantic Renal Coalition (MARC) is pleased to offer "Caring Through the End: Palliative Care Along the Continuum of CKD" on the web.
Go to www.hdcn.com for more information.

National Kidney Foundation (look for Family Focus Newspaper and other educational materials)
www.kidney.org

National Kidney Foundation of Southern California (look for educational materials)
www.kidneysocal.org

National Kidney and Urologic Diseases Information Clearing House
www.niddk.nih.gov now with a Spanish portal as well

Renal Net - An educational resource that provides information on kidney disease for both professionals and any interested party.
www.renalnet.org

Sample recipes from `Cooking for David: A culinary Dialysis Cookbook'
www.CulinaryKidneyCooks.com

UNOS (look for What Every Patient Needs to Know)
www.unos.org

 

Other Resources
Advance HealthCare Organizations and Forms
California Hospital Association (CHA) www.calhealth.org (800) 494-2001
California Medical Association (CMA) www.cmanet.org (800) 882-1cma

American Kidney Fund (look for information on Patient Aid Programs)
www.kidneyfund.org

ANNA's Web Resource, Spotlight on Older Adults
www.annanurse.org/aging

Dialysis Facility Compare (DFC) - "Click" on Compare Dialysis Facilities in your area. This site provides dialysis facility characteristics, demographic information and quality measures data about dialysis facilities that have been approved by Medicare. 
www.medicare.gov

Donate Life! Be an organ and tissue donor.
Sign up at www.donateLIFEcalifornia.org

Eldercare Locator - Helps older adults and their caregivers find local services for seniors, including the information and referral I&R services of their state and area agencies on aging.
www.eldercare.gov

ESRD Networks - contact another Network
www.esrdnetworks.org

Find Dialysis Facility in the USA
www.wheredialysis.com

Medicare Issues and Answers
Available from www.esrdnet5.org

National Alliance for Caregiving - Web site includes studies, tips for caregivers, and a searchable caregiving resources directory.
www.caregiving.org

People Like Us: Long-term Care Residence Chronic Kidney Disease Checklist - NKF.
www.ltckidneychecklist.org

Social Security Administration - Information on eligibility, benefits, publications and more.
www.ssa.gov

The Nephron Information Center - An educational resource that provides links to nephrology and dialysis resources.
www.nephron.com

The Renal Support Network - A non-profit group dedicated to improving the lives of people living with kidney disease. Tell patients about the HOPEline, a toll-free phone line for peer support: (800) 579-1970.
www.renalnetwork.org